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#Post#: 246--------------------------------------------------
Re: Happy Posting
By: Mike Waters Date: July 20, 2023, 3:44 am
---------------------------------------------------------
Cor blimey,
I've just woken in the early 'sleep' hours of my UK morning,
worrying about whether or not this forum might gradually suffer
the same fate as James' Living Water site and just fade into
inactive oblivion.
I reckon that, during the 'rapid eye movement' transition from
dream to reality (see footnote) I had been 'half' dreaming about
merging all of our Members' Corners into one board (or should it
be 'Topic') .... IOW I'm 'fudging'.
In fact in my semi sleep/wakening I had 'fudged' along the lines
of calling the merge "Bind us Lord, bind us with chords that
cannot be broken".
And now I'm really battling with the 'temptation' to do that,
knowing that Helen will say "oh no, here he goes again, meddling
as usual".
But I can't get away from the fact that my life is dominated by
my OCD compulsive need to achieve 'Perfection; in whatever is my
latest 'project'.
That obsession has been the lifelong 'Drive' has has led me
though my Property Development business, my Offshore
Petrochemical Company, my work as an Artist, and my struggle
with finding my place in the ever changing forms of Christian
worship.
At 88 my OCD has become so deeply engrained that I cannot change
and my gravestone epitaph just has to be be "If only...But too
late now"
Footnote
Rapid eye movement sleep is a unique phase of sleep in humans,
mammals and birds, characterized by random rapid movement of the
eyes, accompanied by low muscle tone throughout the body, and
the propensity of the sleeper to dream vividly.(Wikipedia)...IOW
"young men shall see visions and old men shall have dreams"
(Joel 2:28)
Sorry Dave...in fudging I think I've accidentally deleted your
much valued reply....together with most of my earlier Mike's
Corner posts :'(
#Post#: 247--------------------------------------------------
Re: Happy Posting
By: Helen Date: July 20, 2023, 10:14 am
---------------------------------------------------------
[quote author=Mike Waters link=topic=16.msg246#msg246
date=1689842658]
Cor blimey,
I've just woken in the early 'sleep' hours of my UK morning,
worrying about whether or not this forum might gradually suffer
the same fate as James' Living Water site and just fade into
inactive oblivion.
I reckon that, during the 'rapid eye movement' transition from
dream to reality (see footnote) I had been 'half' dreaming about
merging all of our Members' Corners into one board (or should it
be 'Topic') .... IOW I'm 'fudging'.
In fact in my semi sleep/wakening I had 'fudged' along the lines
of calling the merge "Bind us Lord, bind us with chords that
cannot be broken".
And now I'm really battling with the 'temptation' to do that,
knowing that Helen will say "oh no, here he goes again, meddling
as usual".
But I can't get away from the fact that my life is dominated by
my OCD compulsive need to achieve 'Perfection; in whatever is my
latest 'project'.
That obsession has been the lifelong 'Drive' has has led me
though my Property Development business, my Offshore
Petrochemical Company, my work as an Artist, and my struggle
with finding my place in the ever changing forms of Christian
worship.
At 88 my OCD has become so deeply engrained that I cannot change
and my gravestone epitaph just has to be be "If only...But too
late now"
Footnote
Rapid eye movement sleep is a unique phase of sleep in humans,
mammals and birds, characterized by random rapid movement of the
eyes, accompanied by low muscle tone throughout the body, and
the propensity of the sleeper to dream vividly.(Wikipedia)...IOW
"young men shall see visions and old men shall have dreams"
(Joel 2:28)
Sorry Dave...in fudging I think I've accidentally deleted your
much valued reply....together with most of my earlier Mike's
Corner posts :'(
[/quote]
Well Mike I for one WOULD vote for just one thread . I actually
thought that it was going to be like that. Hadn’t thought of
multiple ‘corners ‘
What we all need is to be able to share what’s on our hearts …be
it prayer request , something funny that blessed us..having a
bad day , or a good day ..anything ..
For those who work and have busy lives , they would be more
encouraged to be able to pop quickly on and read or post , and
pop off , rather than to hunt for their own corner .
Case in point , last night Dave came on to post …but as he
hadn’t used “Dave’s Corner “ for a while it was not in the first
page , and he had no idea where or how to find it.
So for some , navigation is not easy .
I know this would mean that we’d have to scroll back to find the
last post that we’d read …but that’s still may be an easier way
.
When a new site starts , it’s always busier “for a while” as
people ask questions etc ..
So it’s always a false measure of posting counts , it never last
…but - Slow and steady wins the race….
We are after staying in touch , not post counts .
King David was cursed ( well Israel paid the price with the
plague ) because he numbered the people …. QUALITY not QUANTITY
is the name and goal of the game.
Just my own few thoughts …xx
#Post#: 248--------------------------------------------------
Re: Happy Posting
By: Nancy Date: July 20, 2023, 10:50 am
---------------------------------------------------------
Hi Rita,
I do hope you fare well tomorrow when you go back to work . I
know too well how exhausting it can be when bad knees make it
difficult to get around. I have missing cartilage and likely
bone on bone in both knees. Hope to try the gel they inject one
day soon. I have no health insurance whatsoever, though, and a
terrible build up of medical and nursing home bills for Kevin
(that my lawyer is sorting through), so not sure how soon I
might be able to do that. Adam has offered to pay for it, but
he already paid half my Heart Institute bill. So, for now, I try
to go easy.
As for MS, many people don't realize there are two types:
relapsing, remitting and primary progressive. Relapsing
remitting comes and goes in flares, and offers respite and
degrees of healing in between attacks. Unfortunately, primary
progressive (ppms) usually takes hold a bit later in life and
then just progresses steadily year by year. Kevin now has late
stage ppms.
#Post#: 249--------------------------------------------------
Re: Happy Posting
By: Mike Waters Date: July 20, 2023, 10:57 am
---------------------------------------------------------
Thanks Helen,
Tremendous encouragement.
I've got it all worked out but I won't activate any change
(apart from setting up a new single or primary ghost board,
within which to merge the members' corners) until members have
had a chance to say "please don't do it".
#Post#: 250--------------------------------------------------
Re: Happy Posting
By: Dave Date: July 20, 2023, 10:59 am
---------------------------------------------------------
In the utmost modesty Mike, I thought my enlightened reply at
11pm was a total gem that even the Apostles of old would have
loved to have read, I shall now join the spirit of protesting,
as a member “ Against Fudging “
Sometimes we just have to enjoy the “flow” and not get our
knickers in a knot, a quote not taken from Ecclesiastes, be
blessed Bro.
#Post#: 252--------------------------------------------------
Re: Happy Posting
By: Pat Date: July 20, 2023, 11:38 am
---------------------------------------------------------
[quote author=Nancy link=topic=9.msg248#msg248 date=1689868225]
Hi Rita,
I do hope you fare well tomorrow when you go back to work . I
know too well how exhausting it can be when bad knees make it
difficult to get around. I have missing cartilage and likely
bone on bone in both knees. Hope to try the gel they inject one
day soon. I have no health insurance whatsoever, though, and a
terrible build up of medical and nursing home bills for Kevin
(that my lawyer is sorting through), so not sure how soon I
might be able to do that. Adam has offered to pay for it, but
he already paid half my Heart Institute bill. So, for now, I try
to go easy.
As for MS, many people don't realize there are two types:
relapsing, remitting and primary progressive. Relapsing
remitting comes and goes in flares, and offers respite and
degrees of healing in between attacks. Unfortunately, primary
progressive (ppms) usually takes hold a bit later in life and
then just progresses steadily year by year. Kevin now has late
stage ppms.
[/quote]
Even though our National Health Service is being plagued by
underfunding and under staffing it is still wonderful to have
free healthcare. We have all contributed by paying national
insurance during our working years. Even my medications come
free of charge.
#Post#: 253--------------------------------------------------
Re: Happy Posting
By: Nancy Date: July 20, 2023, 12:05 pm
---------------------------------------------------------
Yesterday afternoon I went to the nursing home to meet with
Kevin and our lawyer. We have a lot of mess to sort out because
of the length of time it took to get Kevin's Medicaid approval.
Bills piled up and we are in a dispute over the amount of
back-pay we owe the nursing home. Stress on top of stress. So
goes the "system" in America.
Kevin, also, expressed fear because his sleep apnea is
worsening. They need to get him a cpap machine, but not sure
how much of the sleep apnea is caused by the ms; the nerves
responsible for keeping him breathing while he sleeps could be
faltering, so a cpap may not help entirely. Kevin often wakes
up gasping for air. The apnea puts extra strain on his heart.
Adam arrived at the home later and I was so glad because his
antics always cheer Kevin up and distract him from his own
frailty.
We know the apnea could shut down his breathing completely one
night, but, honestly, that might be a more peaceful, merciful
way for him to go than what the ms may progress to. Not being
able to communicate or swallow or breathe are all awful
possibilities to ponder. No one is ready for him to go .
Kevin, honestly, has a strong will to live. I've often felt I
don't especially belong in this world, and I wonder why it was
him instead of me that got nailed with this dreadful disease. I
did try to comfort him, telling him hope is never lost in
Christ, who is really the only hope for ALL of us. I reminded
him of his family, already passed, that he may be reunited with.
As for myself, I have hope and help and care and love in Adam,
yet losing Kevin more than I've already lost him is just
impossible to wrap my mind around. He and I have been together
since we were 15 and 16, 47 years ago. I can't imagine not
having him to advise me, to at least still talk to, reminisce
with ... His memories and mine are combined and lifelong. Many
times, he IS my memory, because his memory is so amazing,
despite the stinking ms.
I feel as though I live two lives, one mostly in the past with
the man I've known and loved, even as a boy, and this new life
that I move forward into with Adam. We know time moves
relentlessly forward, and all three of us face the future with
our hopes and fears and dreams ... but FAITH is what we will
need most. I need the strength to reinforce faith in Kevin, to
teach him TRUST in the Lord. And I hope, through everything,
Adam will come into relationship with the "man upstairs" as he
now refers to our glorious Creator. Adam is a true 'son of
thunder,' so rough around the edges, but with the kindest of
hearts. I think, sometimes, that Adam is a new soul, while I
feel I have lived perhaps a thousand lives. I know the true
meaning of "weary" as Jesus referred to it. I want only a
kinder, gentler world than this fallen tragedy we live upon.
A huge part of me will go with Kevin, but he has given me to
Adam and he wants so badly for us to be happy, to live on with
all he has lost.
What a story my life has become, greater than any I could ever
have written. The joy and the sorrow, the courage and
sacrifice, the graciousness of this man letting go of everything
in life he cherished, when all he wants in the world is to hold
on.
I am so blessed, even while this great curse is upon us.
Darkness and light, forever doing battle.
#Post#: 254--------------------------------------------------
Re: Happy Posting
By: Mike Waters Date: July 20, 2023, 12:09 pm
---------------------------------------------------------
[quote author=Dave link=topic=16.msg250#msg250 date=1689868776]
In the utmost modesty Mike, I thought my enlightened reply at
11pm was a total gem that even the Apostles of old would have
loved to have read, I shall now join the spirit of protesting,
as a member “ Against Fudging “
Sometimes we just have to enjoy the “flow” and not get our
knickers in a knot, a quote not taken from Ecclesiastes, be
blessed Bro.
[/quote]
Dave, I agree that your accidently delete reply represented very
plausible advice. However water (clear or cloudy) is now under
the bridge. Keep your powder dry till you see what you think of
things once I've set up the 'ghost skeleton' (before I gauge
opinion and either delete it or open it up for 'merging posts')
BTW the'Createforum' instructions re merging state that "all
merged previous posts, together with all subsequent posts, will
retain their consecutive posting times and dates" (IOW it would
be exactly as it would have been had the 'Ghost Board' been our
main posting platform from Day 1)
#Post#: 255--------------------------------------------------
Re: Happy Posting
By: Nancy Date: July 20, 2023, 12:24 pm
---------------------------------------------------------
[quote author=Pat link=topic=9.msg252#msg252 date=1689871103]
Even though our National Health Service is being plagued by
underfunding and under staffing it is still wonderful to have
free healthcare. We have all contributed by paying national
insurance during our working years. Even my medications come
free of charge.
[/quote]
Hello, Pat!
The system here is beyond dreadful. Our very good insurance
with the railroad only lasted 2 years beyond disability, then
Kevin was able to go on Medicare which has finally been switched
to long term Medicaid. Filtering through delays, regulations,
requirements, qualifications, the need to "spend down" in order
to qualify for nursing care that no one can afford ... all is a
nightmare, and at times, literally impossible to even face. The
sheer cost is appalling, while the care is subpar. It's all a
continuous battle, while you are already struggling with life
and death health issues. The saddest thing is that we spend so
much time fighting the system, it literally robs us of these
months and the quality time we SHOULD be having.
You MUST have a lawyer, and ... lawyers are not inexpensive,
either.
I can't imagine free healthcare. It would have been such an
ease of heavy, heavy burden.
#Post#: 256--------------------------------------------------
Re: Happy Posting
By: Nancy Date: July 20, 2023, 12:48 pm
---------------------------------------------------------
Mike,
I like the individual "corners", but, then, I'm a textbook
introvert and often need to retreat to a room of my own. ;)
My only thought was perhaps a space specifically for prayer
requests?
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