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   DIR Return to: TECFIDERA (dimethyl fumarate, BG-12, Fumaderm)
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       #Post#: 527--------------------------------------------------
       1st PML case in an MS patient on Tecfidera
       By: agate Date: October 23, 2014, 1:00 am
       ---------------------------------------------------------
       An MS patient who had been taking Tecfidera for 4 years
       developed PML and died of pneumonia. It hasn't been established
       whether the PML is clearly linked to the Tecfidera but Biogen is
       worried.
       However, the patient had had "severe prolonged" decreased white
       cell count (lymphopenia), and one wonders why that issue wasn't
       addressed...
       From the Boston Globe, October 22, 2014:
       [quote]Biogen Idec reports death of patient on its MS pill
       By Robert Weisman  | GLOBE STAFF
       Biogen Idec Inc. said Wednesday that a patient who had taken its
       multiple sclerosis pill Tecfidera for more than four years died
       after getting a rare brain infection, sending shares of the
       Cambridge biotechnology company down sharply.
       While the cause of death was pneumonia and there is no evidence
       conclusively linking it to the best-selling MS treatment, Biogen
       Idec spokeswoman Kate Niazi-Sai said in an interview that the
       company “can’t rule out Tecfidera as playing a role” in the
       brain infection known as progressive multifocal
       leukoencephalopathy, or PML.
       Executives at Biogen Idec, the leading seller of MS drugs,
       reported the death during a conference call with analysts
       Wednesday after releasing stronger than anticipated
       third-quarter financial results. The company’s shares plunged
       $17.70 to $309.07, a loss of 5.4 percent on the Nasdaq stock
       exchange.
       If it is confirmed that Tecfidera caused the brain infection, it
       would be the first time a PML case was tied to Biogen Idec’s
       multiple sclerosis pill. Tecfidera was approved by the Food and
       Drug Administration for US sale in March 2013. It has been used
       by more than 100,000 patients since the company began testing it
       in clinical trials more than 10 years ago.
       As of last month, 495 cases of PML worldwide in patients taking
       an injected Biogen Idec drug, Tysabri, have been reported. Of
       those, 111 patients have died, while the rest are living with
       varying degrees of disability.
       Tysabri was approved by the FDA in 2004, then pulled from the
       market in 2005 because of safety concerns. It was reintroduced
       in 2006 with a stringent monitoring program, and the company has
       since developed a test to determine which patients might be
       vulnerable to the brain infection.
       Niazi-Sai said the company won’t disclose the identity, age, or
       gender of the Tecfidera patient who died. She said the patient
       had been taking the drug for four and a half years, and for
       three and a half years had experienced severe prolonged
       lymphopenia, a lowering of the white blood cell count. That
       condition is a known risk factor for PML.
       Biogen Idec has modified its label for Tysabri to note several
       risk factors for PML. But there are no current plans to change
       the Tecfidera label.
       “At this point, we don’t feel the risk-benefit ratio has changed
       in Tecfidera,” said Niazi-Sai. “We did notify the regulatory
       authorities, and if they want us to revisit our label we will
       work with them.”
       Up to 5 percent of Tecfidera patients have to worry about low
       white blood cell counts, Eric Schmidt, biotechnology analyst for
       financial firm Cowen & Co., wrote in a note to investors
       Wednesday. He cited data from industry consultants. A change in
       the drug’s label could persuade many of those patients --
       especially those with a virus known as a PML risk factor -- to
       stop taking the pill, he said.
       Nonetheless,” wrote Schmidt, “the first report of PML in over
       100,000 patients treated [with Tecfidera] should not be
       concerning for the other 95 percent of the MS population.”
       Tecfidera sales have been brisk of late, making it Biogen Idec’s
       fastest-growing product. Revenue from the drug more than doubled
       to $787.1 million in the three months ending Sept. 30 compared
       with the same quarter last year.[/quote]
       The article can be seen here
  HTML http://www.bostonglobe.com/business/2014/10/22/biogen-idec-reports-death-patient-that-had-taken-its-multiple-sclerosis-pill-tecfidera/xrAtOBsxA7eHZN3BB0phxJ/story.html.
       More here:
  HTML http://www.fiercepharma.com/story/biogen-ms-superstar-tecfidera-misses-estimates-hit-first-confirmed-pml-case/2014-10-22
  HTML http://www.fiercepharma.com/story/biogen-ms-superstar-tecfidera-misses-estimates-hit-first-confirmed-pml-case/2014-10-22
       #Post#: 528--------------------------------------------------
       Re: 1st PML case in an MS patient on Tecfidera
       By: agate Date: October 23, 2014, 10:27 am
       ---------------------------------------------------------
       PML was known to occur with fumaric acid in some dermatologic
       cases, as in this case described in the New England Journal of
       Medicine, April 2013. Dimethyl fumarate (Tecfidera) is a fumaric
       acid ester:
  HTML http://www.nejm.org/doi/full/10.1056/NEJMc1211805
  HTML http://www.nejm.org/doi/full/10.1056/NEJMc1211805
       #Post#: 542--------------------------------------------------
       Re: 1st PML case in an MS patient on Tecfidera
       By: agate Date: November 4, 2014, 7:33 pm
       ---------------------------------------------------------
       More on this case from the MS Foundation (October 28, 2014),
       with remarks by Dr. Ben Thrower:
       [quote]Biogen reports death of patient taking Tecfidera
       10/28/2014
       Pharmaceutical firm Biogen Idec Inc. reported last week that a
       patient who took Tecfidera for four-and-a-half years died after
       being infected with progressive multifocal leukoencephalopathy,
       PML.
       Biogen Idec spokeswoman Kate Niazi-Sai told the Boston Globe
       that even though the patient officially died of pneumonia and
       that its MS drug was not directly linked to the death, Biogen
       “can’t rule out Tecfidera as playing a role.”
       Dr. Ben Thrower, a member of the Multiple Sclerosis Foundation’s
       Medical Advisory Board, said that progressive multifocal
       leukoencephalopathy is a serious viral infection of the brain,
       sometimes resulting in death. According to news reports, the
       company reported the death during a conference call with
       analysts.
       "We have confirmed a case of PML in a patient being treated with
       Tecfidera, who recently died from complications of pneumonia.
       Despite this tragic loss, we believe that the overall positive
       benefit/risk profile of Tecfidera remains unchanged," Biogen
       Chief Executive Officer George Scangos said on the call.
       Niazi-Sai told the Globe that the company would not release the
       age, gender or identity of the individual. Scangos told analysts
       the patient had severe lymphopenia, or low white blood cell
       counts, for three-and-a-half of the four-and-a-half years the
       patient had been taking the drug.
       “This case illustrates the need for regular monitoring of blood
       counts in patients on Tecfidera,” said Dr. Thrower. “The current
       recommendations are for a CBC within 6 months of starting
       Tecfidera and then annually or sooner if indicated. My personal
       feeling is that these recommendations are not enough. At (the
       Shepard Center) we do blood testing, including a CBC and more
       sensitive T-cell subset analysis, before starting Tecfidera and
       then every three months.”
       Since entering the U.S. market in March 2013, more than 100,000
       patients have taken Tecfidera. Scangos said Tecfidera's label
       contains a warning for lymphopenia, a known risk factor for PML.
       “I suspect that new FDA guidelines will be issued that will
       suggest more rigorous safety monitoring,” said Dr. Thrower.
       “While this case of PML is serious and our hearts go out to the
       patient and his family, it does not mean everyone needs to stop
       Tecfidera. It does mean that the risks and benefits need to be
       discussed and that more frequent lab testing should be
       considered.”
       [/quote]
       #Post#: 573--------------------------------------------------
       More about the patient who developed PML on Tecfidera
       By: agate Date: November 30, 2014, 7:20 pm
       ---------------------------------------------------------
       From DG News, November 25, 2014:
       [quote]FDA Warns About Case of PML With MS Drug Dimethyl
       Fumarate
       ROCKVILLE, Md -- The US Food and Drug Administration (FDA) is
       warning that a patient with multiple sclerosis (MS) who was
       being treated with dimethyl fumarate (Tecfidera) developed
       progressive multifocal leukoencephalopathy (PML) and later died.
       The patient who died was not taking any other drugs that affect
       the immune system or drugs that are thought to be associated
       with PML. This is the only confirmed case of this rare and
       serious brain infection reported in patients taking dimethyl
       fumarate.
       As a result, information describing this case of PML is being
       added to the drug’s label.
       The drug manufacturer, Biogen Idec, notified the FDA when the
       patient died after developing PML. The patient had taken
       dimethyl fumarate for more than 4 years. Prior to developing
       PML, the patient had a very low number of lymphocytes in her
       blood. It is unknown whether the low lymphocyte count
       contributed to the development of PML in this patient, or if low
       lymphocyte counts are a risk factor for PML development in
       dimethyl fumarate -treated patients.
       We urge health care professionals and patients to report side
       effects involving dimethyl fumarate to the FDA MedWatch program,
       using the information in the “Contact FDA” box at the bottom of
       the page.
       Healthcare professionals should:
       •
       develop any symptoms that may be suggestive of PML. Symptoms of
       PML are diverse, progress over days to weeks, and include the
       following: progressive weakness on one side of the body or
       clumsiness of limbs; disturbance of vision; and changes in
       thinking, memory and orientation, leading to confusion and
       personality changes.
       •
       symptom suggestive of PML and perform an appropriate diagnostic
       evaluation.
       •
       according to approved labelling.
       Data Summary
       A 54-year-old patient with MS being treated with dimethyl
       fumarate in a clinical trial died after developing PML. The
       patient, who had an 18 year history of MS, had no known medical
       conditions that would predispose her to the development of PML.
       She had no history of prior use of immunosuppressive medications
       and was not taking any concomitant immunosuppressive or
       immunomodulatory medications.
       She had taken glatiramer acetate (Copaxone) for 3 years prior to
       being enrolled in a dimethyl fumarate clinical trial. In the
       clinical trial, she had received placebo for 2 years followed by
       dimethyl fumarate for approximately 4.5 years prior to
       developing PML. During dimethyl fumarate treatment, she had
       severe lymphopenia, with lymphocyte counts consistently below
       500 cells/mcL for 3.5 years before developing PML.
       Two months prior to her death, the patient was hospitalised with
       a presumed MS relapse and treated with corticosteroids. Her
       condition continued to worsen, and dimethyl fumarate was stopped
       at that time. A diagnostic evaluation suggested PML, and this
       diagnosis was confirmed when tests identified John Cunningham
       (JC) viral DNA in the cerebrospinal fluid. The patient developed
       aspiration pneumonia due to dysphagia and died approximately 7
       weeks after discontinuation of dimethyl fumarate.
       PML has previously been reported in Europe in patients treated
       with other drugs containing dimethyl fumarate. The FDA was aware
       of 4 PML cases at the time of dimethyl fumarate approval in
       2013. Three cases occurred in patients with psoriasis who took a
       combination product sold in Germany that includes dimethyl
       fumarate and 3 different salts of monomethyl fumarate, and 1
       case in a patient treated with a compounded product that
       included dimethyl fumarate. In 2 of these cases, the patients
       had previous exposure to immunosuppressive therapy. In the other
       2 cases, patients had prolonged lymphopenia with documented
       lymphocyte counts below 500 cells/mcL. The contribution of
       dimethyl fumarate to the development of PML in these cases is
       unknown.
       Healthcare professionals and patients are encouraged to report
       adverse events or side effects related to the use of these
       products to the FDA's MedWatch Safety Information and Adverse
       Event Reporting Program:
       •
       www.fda.gov/MedWatch/report.htm
       •
       form, then complete and return to the address on the
       pre-addressed form, or submit by fax to 1-800-FDA-0178
       SOURCE: US Food and Drug Administration
       [/quote]
       #Post#: 714--------------------------------------------------
       NEJM letter about MS patient on Tecfidera who died of PML
       By: agate Date: April 8, 2015, 7:01 pm
       ---------------------------------------------------------
       From the New England Journal of Medicine, April 8, 2015. There
       is another letter in the same issue about a psoriasis patient
       who also died of PML while taking Tecfidera. It will be posted
       below in another message window.
       [quote]PML in a Patient with Lymphocytopenia Treated with
       Dimethyl Fumarate
       To the Editor:
       We report the case of a 54-year-old woman with multiple
       sclerosis who was treated with delayed-release dimethyl fumarate
       (DMF; Tecfidera, Biogen Idec) and who died on October 13, 2014,
       from complications related to aspiration pneumonia and
       progressive multifocal leukoencephalopathy (PML) with severe,
       prolonged lymphocytopenia.
       The patient, who had received the diagnosis of multiple
       sclerosis in 1996 and had been treated with glatiramer acetate,
       was randomly assigned to the placebo group in the 2-year
       Determination of the Efficacy and Safety of Oral Fumarate in
       Relapsing–Remitting Multiple Sclerosis (DEFINE) trial. She
       subsequently received delayed-release DMF (at a dose of 240 mg
       three times daily) for 4.5 years in the open-label extension
       study. Twelve months after the initiation of delayed-release
       DMF, severe lymphocytopenia (lymphocyte count, 290 to 580 cells
       per cubic millimeter) developed and persisted for 3.5 years.
       Although the patient had no clinical disease activity since the
       first month of active treatment, she presented with new
       neurologic signs and symptoms consistent with a relapse in
       multiple sclerosis (severe gait disorder, speech disorder, and
       difficulties in left arm coordination) on August 11, 2014. Her
       condition did not improve with the administration of intravenous
       methylprednisolone (1 g once daily on August 11 to 13, 2 g once
       daily on August 20 to 22, and 2 g once daily on September 20 to
       22) and plasmapheresis for the suspected relapse (5 courses, 1
       per day; September 26 to 30). Delayed-release DMF treatment was
       discontinued on August 23. PML was diagnosed on the basis of
       results on magnetic resonance imaging ... and positive results
       on polymerase-chain-reaction assay for JC virus DNA in
       cerebrospinal fluid obtained by means of lumbar puncture on
       October 7. The patient had received no previous
       immunosuppressant drugs or natalizumab.
       Since delayed-release DMF was approved in the United States in
       March 2013, more than 135,000 patients with multiple sclerosis
       have been treated, representing approximately 112,000
       person-years of exposure as of December 31, 2014. As of
       September 26, 2014, a total of 3112 patients with multiple
       sclerosis had received delayed-release DMF in clinical trials,
       representing approximately 7429 person-years of exposure. To
       date, there has been no overall increase in the risk of serious
       infection, including other opportunistic infections. However,
       delayed-release DMF can cause lymphocytopenia, a known risk
       factor for PML. Thus, a contributory role of lymphocytopenia in
       this patient cannot be ruled out.
       In controlled and uncontrolled studies involving patients with
       multiple sclerosis, there was a decrease in the mean lymphocyte
       count of approximately 30% during the first year of treatment
       with delayed-release DMF. The mean lymphocyte count then
       plateaued and remained above the lower limit of the normal range
       ....
       Approximately 2% of patients had reduced lymphocyte counts
       (<500 cells per cubic millimeter) that persisted for more than 6
       months.In this subgroup of patients, which was identifiable
       within the first year of treatment, lymphocyte counts of less
       than 500 per cubic millimeter were generally maintained with
       continued therapy.... Periodic monitoring of absolute lymphocyte
       counts to identify patients at increased risk for severe,
       prolonged lymphocytopenia and consideration of treatment
       interruption in these patients may mitigate the risk of PML.
       Studies to evaluate the effect of delayed-release DMF on
       lymphocyte subgroups are ongoing.
       ______
       Thorsten Rosenkranz, M.D.
       Asklepios Klinik Saint Georg, Hamburg, Germany
       Mark Novas, M.D.
       Biogen Idec, Cambridge, MA
       mark.novas@biogenidec.com[/quote]
       [References omitted]
       The letter can be seen here
  HTML http://www.nejm.org/doi/full/10.1056/NEJMc1415408?query=TOC.
       #Post#: 715--------------------------------------------------
       Re: 1st PML case in an MS patient on Tecfidera
       By: agate Date: April 8, 2015, 7:07 pm
       ---------------------------------------------------------
       From the New England Journal of Medicine, April 8, 2015 (see
       another letter from the same issue in the post above this one).
       This is a letter about a psoriasis patient who died of PML while
       taking Tecfidera and contains some remarks about possible safety
       concerns for this drug.
       [quote]PML in a Patient without Severe Lymphocytopenia Receiving
       Dimethyl Fumarate
       To the Editor:
       Fumaric acid esters, which are prescribed for the treatment of
       psoriasis and multiple sclerosis, are considered to have a
       favorable risk profile. However, treatment-related progressive
       multifocal leukoencephalopathy (PML) has been described in
       association with long-lasting, severe lymphocytopenia (<500
       lymphocytes per cubic millimeter). This has led to the
       recommendation that lymphocyte counts should be monitored in
       patients receiving these drugs in order to prevent opportunistic
       infections such as PML. Here, we report a case of fatal PML
       after treatment with compounded dimethyl fumarate (DMF) in a
       patient without severe lymphocytopenia.
       On July 18, 2014, a 64-year-old woman presented with a 2-week
       history of progressive apraxia. She had been receiving topical
       glucocorticoids and compounded delayed-release DMF (Psorinovo;
       compounding pharmacy, Mierlo-Hout) for the treatment of
       psoriasis since June 2012. Magnetic resonance imaging (MRI) of
       the brain showed multiple subcortical white-matter lesions ....
       Leukocyte and lymphocyte counts were normal before DMF treatment
       but reached a nadir of 4000 cells and 792 cells per cubic
       millimeter, respectively, in June 2014.
       Analysis of the cerebrospinal fluid showed normal levels of
       leukocytes, protein, and glucose. The patient was seronegative
       for the human immunodeficiency virus. At that time, a diagnosis
       of PML was considered. However, testing of the cerebrospinal
       fluid for JC virus DNA on polymerase-chain-reaction (PCR) assay
       was negative. Treatment with DMF was discontinued, and the
       patient received the diagnosis of atypical ischemic stroke.
       Owing to progressive hemiparesis and somnolence, she was
       transferred to our hospital on August 14, 2014. Follow-up MRI
       showed a rapid and widespread dissemination of lesions
       suggestive of PML–immune reconstitution inflammatory syndrome
       (IRIS)....Treatment with mefloquine, mirtazapine, and
       glucocorticoids was initiated. The patient's condition continued
       to deteriorate, and she died on August 26, 2014. PML was
       confirmed on histologic analysis of brain tissue ...and positive
       results on PCR assay for JC virus DNA in brain tissue and
       cerebrospinal fluid ....
       In our opinion, this case represents DMF-associated PML, since
       other immunosuppressive medications or coexisting medical
       conditions were absent. To our knowledge, this is the first
       reported case of compounded DMF–associated PML in a patient
       without severe lymphocytopenia, a situation that was previously
       thought to be unlikely.
       Since the number of patients who are being treated with DMF is
       rapidly increasing after approval of delayed-release DMF
       (Tecfidera) as first-line treatment for relapsing–remitting
       multiple sclerosis, our case raises important questions with
       respect to safety monitoring. Although more than 100,000
       patients with multiple sclerosis have been treated with
       Tecfidera since 2013, the safety profile for long-term treatment
       is unknown. On October 22, 2014, the first case of PML in a
       patient receiving Tecfidera was reported; this patient had
       persistent, severe lymphocytopenia. Our case shows that PML can
       develop during treatment with compounded DMF in patients in whom
       reduced lymphocyte counts are less severe than those in cases
       that have been reported previously.
       ________
       Dennis J. Nieuwkamp, M.D., Ph.D.
       Jean-Luc Murk, M.D., Ph.D.
       Charlotte H.P. Cremers, M.D.
       University Medical Center Utrecht, Utrecht, the Netherlands
       d.nieuwkamp@umcutrecht.nl
       Joep Killestein, M.D., Ph.D.
       VU University Medical Center, Amsterdam, the Netherlands
       Marco C. Viveen, B.A.S.
       Wim Van Hecke, M.D.
       University Medical Center Utrecht, Utrecht, the Netherlands
       Daphne W. Frijlink, M.D.
       Medical Center Zuiderzee, Lelystad, the Netherlands
       Mike P. Wattjes, M.D., Ph.D.
       Bob W. van Oosten, M.D., Ph.D.
       VU University Medical Center, Amsterdam, the Netherlands[/quote]
       [References and supplementary material omitted]
       The letter can be seen here
  HTML http://www.nejm.org/doi/full/10.1056/NEJMc1413724?query=TOC.
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