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#Post#: 5160--------------------------------------------------
Sometimes it's best to fire a neuro
DIR By: agate
Date: April 27, 2026, 11:45 pm
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I've been seeing this neuro regularly for several years now.
She's not an MS specialist, just a general neuro who happens to
be covered by my insurance. She seems quite nice and helpful and
even knowledgeable.
But on Wednesday I left a message at her office about needing
her sign-off on a "reasonable accommodation" request, required
by my building if the building maintenance person installs a
handheld shower attachment for me.
I have the attachment but I can't reach the shower head to
install it myself, and I'd prefer to have the building staff do
it since it's their plumbing. I might do it wrong.
Not only can I not reach it--I can't see what I'm doing very
well, and my hands are shaky.
I thought the neuro could just fill out the form and sign it.
She would need to reply to a couple of questions and sign and
have it faxed back to the office here.
It's been nearly a week now with no call back. Maybe she was at
the AAN conference last week but it was over by Thursday.
I've decided to wait a week or two longer, and if there's still
no return call, I will just call and cancel my upcoming
appointment without rescheduling. That appointment wouldn't be
until July, and it is down to an annual appointment now, but I
just don't see returning to her when I'm not on an MS treatment
any more.
I did see a point in it up till now. She was monitoring my
reflexes, strength, coordination, etc., keeping tabs on how I
was doing. That was of some value to me.
Getting there and back is a chore, though, and if she can't even
call me back to tell me whether or not she can sign this form,
it's time for me to move on.
Doctors don't want to have Medicaid patients. It looks as if
some doctors may actively discourage us.
We're not profitable.
#Post#: 5174--------------------------------------------------
Update on the potentially fired neuro
DIR By: agate
Date: May 12, 2026, 1:19 am
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Over a week ago, having revised my plan after seeking out sage
advice, I mailed the form to the neuro with a letter explaining
my request, and I enclosed a stamped envelope addressed to the
building manager, to make it ultra-easy for the neuro just to
sign the form and shove it into the envelope. Maybe office staff
people can seal the envelope and mail it for her.
The thought was that my phone message might have been
overlooked.
So far I've had no word that the building manager has received
anything from this doctor. I'll wait a while longer. The form
is no longer in my possession, of course. I would have to get
another form if I ask another doctor instead, like my primary
care doctor.
I would probably ask another doctor. And I will call the neuro's
office and just cancel the September appointment. I will
probably be asked if I want to reschedule, and I wlll say, "Not
at this time. I'll get back to you if I'd like to reschedule."
That would end that relationship without actually officially
ending it. If I'm asked for a reason, I will explain, but I
doubt that I would be asked unless I told them I was
disappointed in this doctor.
I decided I might want to keep this doctor as an option in case
I do have a flareup or some symptom that is a concern. The last
time I checked, this doctor was the only neuro who is in my
insurance network.
The care and management of neurologists can be a ticklish
matter.
#Post#: 5179--------------------------------------------------
Neuro not fired (but ophthalmologist is)
DIR By: agate
Date: May 16, 2026, 12:54 am
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According to the building manager, the neuro came through with
the form. I had to ask to find this out, and it will be a while,
maybe many weeks or even months, before I actually have the
shower attachment installed but at least I won't have to end my
relationship with the neuro.
In the meantime, the ophthalmologist I've been seeing regularly
for nearly 17 years sent an e-mail the other day cancelling an
upcoming annual appointment and giving a number to call to
reschedule. It turned out that his schedule is so overbooked,
and he is spreading himself so thin by spending some days of
each week at another location that is too distant for me, that
we came to a parting of the ways.
I hardly ever ditch a doctor, and this one was the best
ophthalmologist I've ever had. I'm transferring to another eye
doctor in the same clinic though I know almost nothing about
him.
I'm too set in my ways by now to be very flexible about my own
schedule. I'm relieved that so far the clinic people seem to
understand the situation.
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