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       #Post#: 4539--------------------------------------------------
       Tolebrutinib for nonrelapsing SPMS?
       By: agate Date: September 3, 2024, 8:52 pm
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       Sanofi press release about tolebrutinib (September 2, 2024):
  HTML https://www.sanofi.com/en/media-room/press-releases/2024/2024-09-02-05-00-00-2938875
       #Post#: 4541--------------------------------------------------
       Tolebrutinib fails 2 in trio of phase 3 MS trials but pharma sti
       ll plans FDA filing (FierceBiotech)
       By: agate Date: September 5, 2024, 1:11 am
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       From FierceBiotech (September 2, 2024)--"Sanofi's tolebrutinib
       fails 2 in trio of phase 3 MS trials, but pharma still plans FDA
       filing":
  HTML https://www.fiercebiotech.com/biotech/sanofis-tolebrutinib-fails-2-trio-phase-3-ms-trials-pharma-still-plans-fda-filing
       #Post#: 4564--------------------------------------------------
       (ECTRIMS) Tolebrutinib slows disability in non-relapsing SPMS
       By: agate Date: September 21, 2024, 6:30 pm
       ---------------------------------------------------------
       From MedPage Today (September 20, 2024)--"Tolebrutinib slows
       disability in non-relapsing secondary progressive MS":
  HTML https://bit.ly/3BmoIWy
       #Post#: 4587--------------------------------------------------
       Tolebrutinib, fenebrutinib, remibrutinib
       By: agate Date: October 16, 2024, 1:00 am
       ---------------------------------------------------------
       From Managed Health Care Executive (October 14, 2024)--"It's
       Been a Bumpy Ride for the BTK Inhibitors for MS":
  HTML https://www.managedhealthcareexecutive.com/view/it-s-been-a-bumpy-ride-for-the-btk-inhibitors-for-ms
       #Post#: 4769--------------------------------------------------
       (NEJM) Tolebrutinib in nonrelapsing SPMS
       By: agate Date: April 10, 2025, 1:10 am
       ---------------------------------------------------------
       From the New England Journal of Medicine (April 10,
       2025)--"Tolebrutinib in nonrelapsing secondary progressive
       multiple sclerosis":
  HTML https://www.nejm.org/doi/full/10.1056/NEJMoa2415988?query=TOC#
       Under "Adverse Events" there is this:
       [quote][font=otnejmquadraat]The incidence of death was similar
       in the two groups [the tolebrutinib group and the placebo
       group]. In the tolebrutinib group, one participant had liver
       failure that was assessed as being related to tolebrutinib; this
       participant died as a result of postoperative complications
       related to a liver transplantation[/font].[/quote]
       #Post#: 4782--------------------------------------------------
       (MedPage Today) Tolebrutinib benefits nonrelapsing SPMS
       By: agate Date: April 23, 2025, 1:13 am
       ---------------------------------------------------------
       My own reaction to the news about tolebrutinib is lukewarm at
       best but it is getting some attention lately, particularly with
       Sanofi's claim that this is "the very first time we have
       identified a treatment that is effective for this form of MS."
       From MedPage Today (April 14, 2025)--"Tolebrutinib benefits
       nonrelapsing secondary progressive MS":
       [font=minion-pro]
  HTML https://tinyurl.com/y2zfyvep[/font]
       #Post#: 4805--------------------------------------------------
       (NEJM editorial) Progress toward mitigating disability progressi
       on in MS
       By: agate Date: May 14, 2025, 7:46 pm
       ---------------------------------------------------------
       This should provide access to the full article. From the New
       England Journal of Medicine, editorial by Peter A. Calabresi, MD
       (May 14, 2025)--"Progress toward mitigating disability
       progression in multiple sclerosis":
  HTML https://www.nejm.org/doi/full/10.1056/NEJMe2503891?query=TOC
       If that link doesn't get you there, here is the editorial
       (emphasis added):
       [font=arial](New England Journal of Medicine Editorial)
       "Progress toward Mitigating Disability Progression in Multiple
       Sclerosis" by Peter A. Calabresi, MD:[/font]
       [font=arial]Multiple sclerosis is the most common cause of
       progressive neurologic disability in young adults. There had
       been no treatments for the disease, except for glucocorticoids,
       which were used for more than 25 years before they were shown to
       reduce the duration and severity of acute relapses but to have
       no benefit with respect to the accumulation of disability. Then,
       in 1993, interferon beta was shown to reduce the frequency of
       relapses and the number and area of lesions on T2-weighted
       magnetic resonance imaging (MRI) of the brain.[/font]
       [font=arial] Since then, more than 20 additional drugs have been
       approved for multiple sclerosis, predominantly for relapsing
       forms of the disease. These compounds mostly modulate the
       peripheral immune system and minimally target existing lesions
       in the brain and meninges. As a result, persons with multiple
       sclerosis who are treated with these drugs have few new clinical
       exacerbations; however, the lesions that form before treatment
       often remain chronically active and continue to cause
       progressive tissue damage and disability. The pathogenesis of
       secondary progressive multiple sclerosis, which is characterized
       by insidious disease progression in the absence of new
       infiltration of peripheral immune cells, involves reactive
       gliosis (microglia and astroglia), chronic demyelination, and
       neuroaxonal injury.[/font]
       [font=arial]In this issue of the Journal, three landmark
       clinical trials provide evidence that a brain-penetrant Bruton’s
       tyrosine kinase (BTK) inhibitor, tolebrutinib, may slow
       disability progression in multiple sclerosis. Investigators
       report the efficacy of tolebrutinib in relapsing multiple
       sclerosis (the GEMINI 1 and GEMINI 2 trials)[/font][font=arial]
       and secondary progressive multiple sclerosis (the HERCULES
       trial).[/font]
       [font=arial] BTK inhibitors are being tested in several trials
       in immune-mediated diseases because the enzyme is important for
       B-cell activation.[/font][font=arial] BTK is also expressed in
       myeloid lineage cells, including reactive
       microglia.[/font][font=arial] Tolebrutinib was designed to be
       brain-penetrant to suppress B cells both in the periphery and
       the meninges, as well as in activated microglia at the edge of
       chronic active lesions.[/font]
       [font=arial]The HERCULES trial, which recruited participants
       with secondary progressive multiple sclerosis and no recent
       clinical relapses, assessed the efficacy of tolebrutinib as
       compared with placebo in the absence of classic inflammatory
       disease. The percentage of participants who had confirmed
       disability progression that was sustained for at least 3 months
       and for at least 6 months was smaller in the tolebrutinib group
       than in the placebo group. The rate of new or enlarging lesions
       on T2-weighted MRI was lower in the tolebrutinib group than in
       the placebo group, a finding that suggests that there was a
       component of active inflammation in this trial population,
       despite attempts to recruit participants with noninflammatory
       progressive multiple sclerosis.[/font]
       [font=arial]The GEMINI trials were active-comparator trials for
       ethical reasons (because there are effective therapies known to
       reduce relapse rates). [/font]
       [font=arial]The two trials compared tolebrutinib with
       teriflunomide and involved participants with relapsing forms of
       multiple sclerosis. There was no significant difference between
       the two drugs in the annualized relapse rate or the number of
       new or enlarging lesions on T2-weighted MRI. This result is
       consistent with the results of another recently completed trial
       of a BTK inhibitor (evobrutinib) for the treatment of relapsing
       multiple sclerosis that acts in the
       periphery.[/font][font=arial] Nonetheless, despite the absence
       of any additional beneficial effect on acute
       inflammation-mediated clinical events or acute inflammatory
       activity on MRI (as compared with teriflunomide), there was
       apparent slowing of confirmed disability progression with
       tolebrutinib, which, when viewed in the context of the HERCULES
       trial, suggests that tolebrutinib may target chronic
       inflammation in the central nervous system.[/font]
       [font=arial]Caution in the interpretation of these results is
       indicated, pending further data analyses from these trials and
       ongoing studies of BTK inhibitors in progressive multiple
       sclerosis. Progression independent of relapse activity has been
       widely cited as an important outcome in studies in multiple
       sclerosis, but it does not capture subclinical MRI activity and
       accumulated lesion load on T2-weighted MRI that are known to be
       more prevalent than relapses and to predict future disease
       progression.[/font][font=arial] Progression in the absence of
       relapses and new lesion formation on MRI is more sensitive in
       determining whether the mechanisms underlying disease
       progression are new inflammatory infiltrates (new or
       gadolinium-enhancing lesions) or the insidious neurodegenerative
       process for which we need new therapies.[/font]
       [font=arial]Participants in the HERCULES trial were enrolled
       because they were having progression despite previously
       receiving available disease-modifying therapies for multiple
       sclerosis. However, more than 70% of the participants were only
       receiving first-line therapy, and in many cases these drugs are
       only partially effective at reducing inflammation. Furthermore,
       for patients who are receiving stronger therapies, the
       withdrawal of these therapies could lead to delayed reactivation
       of inflammatory disease. A total of 13% of the participants had
       gadolinium-enhancing lesions at baseline, and new lesions on MRI
       were observed in participants during the trial. Therefore, some
       of the observed effects on disability progression may be
       attributable to antiinflammatory effects akin to what has been
       seen with existing multiple sclerosis drugs when assessed in
       persons with progressive multiple sclerosis who have
       superimposed relapses or MRI activity. Indeed, the reduction in
       new and enlarging lesions with tolebrutinib could support this
       notion. The absence of an apparent effect of tolebrutinib on MRI
       activity in the GEMINI studies argues against the possibility
       that new lesions on T2-weighted MRI were the sole driver of
       disease progression in the HERCULES trial. BTK is expressed at
       the edge of chronic active lesions, which can be assessed with
       the use of susceptibility-weighted imaging to detect iron-laden
       microglia in phase rim lesions, which are known to predict worse
       outcomes in multiple sclerosis.[/font]
       [font=arial] Analysis of the susceptibility-weighted imaging
       data in these trials may help discern whether there was a
       greater treatment effect in the participants with phase rim
       lesions than in those without them and would strongly support
       the concept that tolebrutinib was indeed, in part, targeting
       activated microglia in chronic active
       lesions.[/font][font=arial]A serious safety concern, related to
       BTK inhibitors as a class when tested in persons with multiple
       sclerosis, has been markedly elevated levels of
       aminotransferases. These events led to the Food and Drug
       Administration placing a temporary hold on all the ongoing BTK
       inhibitor studies until it was determined that the vast majority
       of the most serious cases were occurring in the first 12 weeks
       of treatment but were reversible if detected rapidly through
       more frequent laboratory testing. If these data are replicated
       in ongoing studies, and BTK inhibitors are approved for
       progressive multiple sclerosis, clinicians will need to grapple
       with when and how to use these drugs, which may have less robust
       antiinflammatory activity than the available monoclonal
       antibodies, but which could be directly targeting the
       pathogenesis of insidious progression in persons with multiple
       sclerosis. Clinical trials are warranted to evaluate the added
       benefits of initiating combination therapy from the onset of
       disease, which could enable targeting of both inflammation and
       neurodegeneration.[/font]
       [font=arial][Reference notes omitted][/font]
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