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       #Post#: 4190--------------------------------------------------
       Why do NARCOMS questionnaires never deal with falls?
   DIR By: agate
       Date: October 18, 2023, 1:18 am
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       There is a new NARCOMS survey to fill out. If you're not
       familiar with NARCOMS:
  HTML https://www.narcoms.org/
       I've been doing NARCOMS surveys since they began. The fairly
       long questionnaires often ask about an extensive list of MS
       symptoms, with a special focus on how a person has been doing in
       the last 4 weeks (or some other specified period of time).
       There have been questions about gait, bladder, bowels, vision,
       spasticity, tremors, etc. There have been questions about MS
       drugs, and questions about use of aids like wheelchairs or
       walkers or canes.
       But I can't recall any questions about falls, ever.
       From years of running my eye over several MS online message
       boards and from talking with people with MS in real life, as
       well as from my own experience, it's clear to me that falls are
       often a very major part of our lives if we have MS.
       I fail to understand why the NARCOMS surveys omit any mention of
       falls.  It would be instructive for anyone interested in helping
       people with MS to find out just how frequent falls typically are
       and under what circumstances they occur. It would also be
       helpful to know what kinds of injuries typically happen--and
       especially how long it takes to recover from falls and
       fall-related injuries.
       Preventing falls should be at the top of the agenda for anyone
       with MS, in my opinion.  I have left a message on the NARCOMS
       Website about including information about falls in future
       surveys.
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