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#Post#: 404--------------------------------------------------
WELCOME back, Matt2!
By: agate Date: July 24, 2014, 12:11 pm
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Matt, welcome back! Like darumadoll, you're among the earliest
members of this board.
I'll go ahead and delete the other registration for you
here--the one I transferred over from the board's old format--if
that's all right with you. Just so there aren't two user names
for any one person.
I checked the log in information for all of the listed members,
and about 15 members have actually logged in since this new
board opened (November 2013). Others may have been reading but
not logging in.
Dave (Mr. Soul, Mr. Natural) died as you may know, and Cherie
(lady_express_44) didn't like the new format and is active on
another board these days.
As for the other names on the member list, many are people who
used to post here and might return. They were sent e-mails
whenever possible, to let them know about the new board. Many
e-mails were no longer valid, and so many people didn't get
notified.
I went to an MS support group and to sessions of an MS fatigue
study being done at the local VA Hospital, and I made sure
everyone there got an announcement about this board and its URL.
A few of the newer names on the member list are some of those
people.
I'd appreciate any suggestions for making this a better and more
user-friendly place.
Matt, I look forward to hearing from you. :)
#Post#: 549--------------------------------------------------
Re: WELCOME back, Matt2!
By: Matt2 Date: November 10, 2014, 3:38 pm
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This place is terrific. I am off in my own world these days
though, and am not reading about MS as much as I used to.
I still have CDMS but I still have no MRI lesions, and my
neurologist still doesn't know what to make of it...She hasn't
seen CDMS but no lesions in many people with still no lesions on
MRI after 14 years, but the evidence is far too great for her to
accuse me of faking anything, so she doesn't know what it all
means.
#Post#: 551--------------------------------------------------
Re: WELCOME back, Matt2!
By: agate Date: November 10, 2014, 3:46 pm
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Thanks for the compliment. I realize that MS is a pretty
depressing topic that a person doesn't want to dwell on very
often.
About your MIR results--there do seem to be people whose MRIs
don't show MS lesions for years. I've heard of others like
yourself. They're still learning about MRIs and what they can
reveal and not reveal, and most neuros seem aware that a person
can have MS but no MRI lesions, though sooner or later lesions
are probably going to show up.
How have you been doing? Are you able to do things you want to
do and need to do?
Are you still studying indigenous North American languages?
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