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       #Post#: 280--------------------------------------------------
       (AAN) Tysabri every 8 weeks might cut PML risk?
   DIR By: agate
       Date: May 3, 2014, 7:46 pm
       ---------------------------------------------------------
       The authors are working on the idea that Tysabri infusions every
       8 weeks might be an equally effective dosing regimen and might
       reduce the PML risk.
       Presented at the annual AAN conference in Philadelphia, April
       29, 2014:
       --- Quote ---
       > [P2.251] Multicenter Retrospective Study Of Extended Dosing Of
       Natalizumab In Multiple Sclerosis: A Strategy For Mitigating
       Risk Of Progressive Multifocal Leukoencephalopathy While
       Maintaining Efficacy?
       >
       >
       > Joseph Herbert,1Lana Zhovtis Ryerson,2Carlo- Use #013651
       Tornatore,3John Foley,4Bianca Weinstock-Guttman,5Ilya
       Kister,2Krupa Pandey,6Gina Remington,7Teresa Frohman,7Eugene
       Major,8Sara Qureshi,7Shin Beh,7Darin Okuda,7Puspa Utomo,2Channa
       Kolb,9David Hojnacki,5Elliot Frohman7
       >
       > 1Fair Lawn, NJ, USA, 2New York, NY, USA, 3Washington, DC, USA,
       4Salt Lake City, UT, USA, 5Buffalo, NY, USA, 6Livingston, NJ,
       USA, 7Dallas, TX, USA, 8Bethesda, MD, USA, 9Williamsville, NY,
       USA
       >
       > OBJECTIVE:
       >
       > Investigate whether Natalizumab extended dosing schedule
       mitigates progressive multifocal leukoencephalopathy risk while
       maintaining clinical and radiological efficacy in multiple
       sclerosis.
       >
       > BACKGROUND:
       >
       > Progressive multifocal leukoencephalopathy (PML) caused by JC
       virus (JCV) is the most serious complication associated with use
       of Natalizumab (NTZ) in patients with Multiple Sclerosis (MS).
       PML risk after previous JCV exposure may be as high as 8.5/1,000
       in long term NTZ recipients with high JCV antibody index. PML
       susceptibility may reflect, at least in part, excessive
       reduction in discrete tissue compartment trafficking of immune
       cells required for JCV surveillance. While current MS treatment
       guidelines utilize a standard 300 mg NTZ dose administered every
       4 weeks, percentage saturation of α4β1 integrin
       receptor on circulating lymphocytes is contingent upon NTZ serum
       concentrations, which in turn may be influenced by individual
       metabolism, body mass, dosage, and dose frequency. Pivotal trial
       and postmarketing data suggest MRI and clinical activity
       generally recur 12-16 weeks following cessation of NTZ therapy.
       We hypothesized that transition to an 8-week dosing regimen
       would, in a sense, establish the phenomenon of oscillating and
       therapeutic anti-microbial immune reconstitution against a
       ubiquitous viral pathogen, JCV.
       >
       > DESIGN/METHODS:
       >
       > Retrospective analysis of data provided by six MS Centers for
       patients who received NTZ extended dosing (ED) schedules (every
       6,7 or 8 weeks) will be presented.
       >
       > RESULTS:
       >
       > 586 patients have received ED NTZ for at least 3 consecutive
       doses. Average age: 44 years; Male:female 32:68%; mean duration
       NTZ treatment (total): 37 doses; mean duration NTZ (ED): 12
       doses; JCV immunopositivity: 63%.Relapse rate and MRI
       progression remained extremely low despite trend toincrease with
       increasing ED interval. Not a single case of PML was reported.
       >
       > Subgroup analysis, tolerability data, annualized relapse rates
       and MRI analysis will be presented.
       >
       > CONCLUSIONS:
       >
       > Our collective observations support the hypothesis that
       extended dosing NTZ regimen may represent an effective strategy
       to mitigate PML risk, while maintaining clinical and
       radiological efficacy in MS. Prospective study is planned.
       >
       > Category - MS and CNS Inflammatory Disease: Clinical Science
       >
       >
       >
       --- End Quote ---
       #Post#: 729--------------------------------------------------
       Extending Tysabri dosage to 8 wks. shown safe, effective
   DIR By: agate
       Date: April 20, 2015, 6:53 pm
       ---------------------------------------------------------
       More on this from the current AAN conference (April 2015) via
       Medical Xpress, April 20, 2015:
       --- Quote ---
       > Extending natalizumab up to 8 weeks shown safe and effective
       in patients with MS
       >
       > In a study of 1,964 patients with multiple sclerosis (MS) led
       by researchers at the NYU Langone Multiple Sclerosis
       Comprehensive Care Center, extending the dose of natalizumab
       from 4 weeks up to 8 weeks was shown to be well-tolerated and
       effective in patients, and resulted in no cases of the
       potentially fatal side effect progressive multifocal
       leukoencephalopathy (PML).
       >
       >
       > The drug showed similar efficacy in treating disease activity
       among patients, according to the study led by Lana
       Zhovtis-Ryerson, MD, an assistant professor of neurology at the
       NYU Langone Multiple Sclerosis Comprehensive Care Center.
       >
       > The findings were presented at the American Academy of
       Neurology Annual Meeting held April 18-25, in Washington, D.C.
       >
       > Natalizumab is an infusion drug known as a monoclonal antibody
       that is used to prevent MS symptoms and flare-ups and slow
       worsening disability.
       >
       > However, taking the medication longer than two years may
       increase risk for a rare but potentially fatal side effect
       called PML, an untreatable brain infection caused by the JC
       virus that occurs in up to 1.3 percent of patients taking
       natalizumab.
       >
       > The medication is typically prescribed in 300-milligram
       infusions every four weeks.
       >
       > "There remains much unknown about whether the drug will lose
       effectiveness if dosing is extended," explains Dr.
       Zhovtis-Ryerson. "Our study showed treatment with natalizumab
       was safe for patients with similar efficacy reported as the
       standard dosing, potentially enabling patients to stay on
       effective MS medication at a reduced frequency of infusions and
       with lower risk of PML. "
       >
       > Zhotvis-Ryerson and colleagues at 10 U.S. M.S. Centers sought
       to compare the safety and efficacy of an extended dose of
       natalizumab to the standard dose. They retrospectively compared
       1,078 patients taking a standard 4-week dose to 886 taking an
       extended dose between 4 weeks, 3 days and 8 weeks, 5 days.
       >
       > The researchers found extending the dosing schedule of
       natalizumab to between 5 and 8 weeks does not affect the drug's
       efficacy profile with 65 percent of participants in each group
       not showing clinical MS activity, and comparable rates of new
       lesions reported on imaging.
       >
       > Zero cases of PML were reported in the extended dosing group,
       while two cases were reported in the standard dose group, though
       the researchers said statistical significance has not been
       reached yet. No other major adverse events were reported.
       >
       > "While the findings are encouraging, more research is needed
       to determine whether extending natalizumab dosing may reduce
       disability progression," says Dr. Zhovtis-Ryerson.
       >
       > More information: [P3.267] Safety and Efficacy of Extended
       Dose Natalizumab in Multiple Sclerosis: An Ongoing Multicenter
       Study.
       > Session: P3: Poster Session III: MS and CNS Inflammatory
       Diseases: Treatment Efficacy, Safety and Tolerability (2:00
       PM-6:30 PM)?Date/Time: Tuesday, April 21, 2015 - 2:00 pm
       >
       > Provided by New York University School of Medicine
       --- End Quote ---
       #Post#: 778--------------------------------------------------
       Re: (AAN) Tysabri every 8 weeks might cut PML risk?
   DIR By: agate
       Date: May 7, 2015, 7:39 pm
       ---------------------------------------------------------
       From Multiple Sclerosis News Today, April 27, 2015:
       --- Quote ---
       > Study Tests Safety & Efficacy of New Treatment Intervals For
       MS Therapy Natalizumab
       >
       > Diogo Bruno, MD
       >
       >
       > A new study presented last week during the American Academy of
       Neurology’s 67th Annual Meeting in Washington, DC provides new
       treatment strategies for multiple sclerosis (MS) using a
       monoclonal antibody already used in some MS patients.
       >
       > ... Natalizumab is a drug used for treating
       relapsing-remitting MS, usually administered by intravenous
       infusion once per month that reduces the ability of inflammatory
       immune cells to enter the brain and affect nerve cells. The drug
       was approved in 2004 by the U.S. Food and Drug Administration
       and has been proven effective in treating MS relapse, vision
       loss, and cognitive symptoms. Nevertheless, extended (longer
       than two years) use of this medication is associated with an
       increased risk for progressive multifocal leukoencephalopathy
       (PML), a rare but severe complication caused by JC virus
       infection that takes advantage of this immunodepression in the
       brain.
       >
       >
       > A team of researchers led by Dr. Lana Zhovtis-Ryerson,
       assistant professor of neurology at NYU Langone’s Multiple
       Sclerosis Comprehensive Care Center reported on an ongoing
       multiple center study of close to 2,000 patients in which they
       extended the dosing schedule of natalizumab to between 5 and 8
       weeks. More specifically, Dr. Zhovtis-Ryerson and colleagues are
       retrospectively comparing patients in from ten U.S. MS treatment
       centers, collecting data every 4 weeks in a combination of
       schedules.
       >
       > The treatment efficacy at this point appears similar to
       standard schedule (every 4 weeks) with comparable rates of
       symptomatic MS activity and new lesions in imaging studies.
       Extended schedule groups had no cases of PML, while the standard
       schedule group had 2 cases reported. There were no other major
       adverse effects seen in any group.
       >
       > Nevertheless, while these differences in safety between
       schedules are encouraging, statistical significance was not
       reached. Consequently, further research is needed to ascertain
       the maintenance of natalizumab efficacy with a more favorable
       safety profile.
       --- End Quote ---
  HTML http://multiplesclerosisnewstoday.com/2015/04/27/study-tests-safety-efficacy-new-treatment-intervals-ms-therapy-natalizumab/
  HTML http://multiplesclerosisnewstoday.com/2015/04/27/study-tests-safety-efficacy-new-treatment-intervals-ms-therapy-natalizumab/
       #Post#: 785--------------------------------------------------
       Re: (AAN) Tysabri every 8 weeks might cut PML risk?
   DIR By: agate
       Date: May 12, 2015, 7:01 pm
       ---------------------------------------------------------
       More on this in MedPage Today, May 12, 2015:
       --- Quote ---
       > Increasing Tysabri Dosing Interval Appears Effective
       >
       >
       > by John Gever
       > Managing Editor, MedPage Today
       >
       >
       > Freedom from relapse was maintained in multiple sclerosis
       patients on natalizumab (Tysabri) who received the infusion drug
       less frequently than the recommended 4-week interval, with lower
       risk of progressive multifocal leukoencephalopathy (PML),
       preliminary results from an ongoing analysis indicated.
       >
       > Among 886 patients treated with "extended" dosing at 10
       multiple sclerosis centers nationwide, the mean annualized
       relapse rate was the same at 0.1 per year as in 1,078 patients
       receiving natalizumab at the standard 4-week interval, according
       to Lana Zhovtis-Ryerson, MD, of NYU Langone Medical Center in
       New York City. MRI lesions counts were also similar.
       >
       > Although patients testing positive for the JC virus -- the
       pathogen whose reactivation triggers PML, a sometimes fatal
       brain inflammation -- comprised 59% of the extended dosing
       group, none have so far developed PML.
       >
       > With a total of 1,023 patient-years of exposure to natalizumab
       in this JC-positive subgroup, published risk algorithms show an
       expected incidence of 2.5 cases, Zhovtis-Ryerson and colleagues
       calculated.
       >
       > At this point the finding of zero cases with extended dosing
       is not statistically significant, the researchers cautioned --
       but if the exposure reaches 1,248 patient-years with still no
       cases, it will be significant at P<0.05, Zhovtis-Ryerson
       indicated.
       >
       > Meanwhile, two PML cases have developed in the standard-dosing
       group, among whom 41% are JC-positive and who have received a
       mean of 30 natalizumab doses (SD 22).
       >
       > Brian Weinshenker, MD, of the Mayo Clinic, who was not
       involved with the study, told MedPage Today that the approach
       deserves more study but urged caution in adopting it clinically.
       >
       > He noted that if just one patient in the extended dosing group
       developed PML, "it would have completely negated any trend to
       reduced risk."
       >
       > PML has been the primary concern with natalizumab almost since
       it was introduced in 2004. When several cases turned up shortly
       after its approval, the drug was withdrawn for some months, then
       relaunched with a restricted distribution program that included
       clinician and patient education on the risk.
       >
       > The question of how to reduce PML risk with natalizumab --
       which exceeds 1% in patients positive for JC virus and who have
       two other risk factors (treatment duration >2 years and history
       of immunosuppressant therapy) -- has occupied MS neurologists
       since the relaunch. Most studies have shown that patients who
       discontinue the drug or take long "holidays" experience a spike
       in relapse risk.
       >
       > Switching to another drug has not prevented such spikes
       because a months-long washout period after natalizumab
       discontinuation is needed before starting a different agent.
       > Some clinicians have been experimenting instead with longer
       dosing intervals, in the belief that the 4-week schedule keeps
       the drug's target -- alpha4beta1 integrin, an adhesion molecule
       involved in immune cell trafficking -- so saturated that JC
       virus immune surveillance is eliminated. Extending the interval
       may relax the immune suppression just enough to keep latent JC
       virus under control while still maintaining the anti-relapse
       effect.
       > In the current study, reported at the American Academy of
       Neurology's annual meeting, Zhovtis-Ryerson and colleagues
       sought to capture this empirical experience by canvassing
       centers that have adopted the strategy with some patients.
       >
       > They defined extended dosing as any interval from 31 days up
       to 61 days. They further subdivided the extended dosing patients
       into those with early extended dosing (31 to 48 days; n=284) and
       late extended dosing (49 to 61 days; n=293). Another 309
       patients had dosing that varied and could not be classified into
       either of those groups.
       >
       > Patients in the extended dosing groups were at somewhat higher
       risk for PML than those treated at the recommended interval,
       with a higher proportion testing positive for JC virus, more
       patients with a history of immunosuppressant therapy (18% versus
       11%), and more total natalizumab doses (mean 39 versus 30).
       Patient age, disease duration, and gender balance did not differ
       markedly between standard and extended dosing groups, however.
       >
       > Among extended dosing patients, the mean duration of that
       schedule was 23 months overall (SD 14, range 3-116). These
       varied only modestly between the early, late, and variable
       dosing regimens.
       >
       > Treatment efficacy (natalizumab's forte) was excellent
       irrespective of dosing interval. Some 65% of standard and 65% of
       extended dosing groups showed no evidence of disease activity
       (NEDA) -- that is, no active MRI lesions and no clinical
       activity. The variable extended dosing group suffered a little
       bit in this respect, with 55% meeting the NEDA standard compared
       with about 70% for both early and late dosing (P<0.001 versus
       early extended dosing, P=0.126 versus late dosing).
       >
       > Weinshenker commented that selection of patients for extended
       dosing, which was not random, might have involved "biases
       against committing more aggressive MS patients on the extended
       interval program, which might reduce the ability of the
       investigators to detect reduction in efficacy."
       >
       > Nevertheless, he said, extended dosing "is a promising and
       sensible approach that might turn out to be effective."
       > Zhovtis-Ryerson and colleagues have established a registry
       called EXTEND to which other clinicians may contribute, at
  HTML http://www.msbase.org
  HTML http://www.msbase.org
       . They are also planning a prospective
       study to examine effects of the different regimens on disability
       progression over time.
       >
       > __________________
       > The study had no external funding and authors declared they
       had no financial interests relevant to the work.
       >
       > Reviewed by Robert Jasmer, MD Associate Clinical Professor of
       Medicine, University of California, San Francisco
       --- End Quote ---
       The article can be seen here
  HTML http://www.medpagetoday.com/Neurology/MultipleSclerosis/51485.
       #Post#: 960--------------------------------------------------
       New data show longer Tysabri dosing interval in MS is feasible
   DIR By: agate
       Date: October 7, 2015, 6:20 pm
       ---------------------------------------------------------
       Excerpted from MedPage Today, October 7, 2015:
       --- Quote ---
       > New Data Show Longer Tysabri Dosing Interval in MS Is Feasible
       >
       > But available data remain underpowered to confirm PML risk
       reduction
       >
       >
       > by John Gever
       > Managing Editor, MedPage Today
       >
       >
       > BARCELONA -- Updated data from an ongoing study indicate that
       relapse rates and MRI lesion activity may actually be improved
       among multiple sclerosis patients receiving natalizumab
       (Tysabri) every 8 weeks as compared with the standard 4-week
       interval, with a possibly reduced risk of progressive multifocal
       leukoencephalopathy (PML).
       >
       > With almost 2,000 patients enrolled in the study -- a
       prospectively scheduled chart review of patients at 11 U.S.
       centers who are receiving natalizumab on either the standard
       schedule or some type of extended-dosing interval -- the
       percentage of patients with relapses or clinical worsening,
       annualized relapse rate, and the percentage of patients with new
       T2 lesions were all significantly lower among those on extended
       dosing, said Lana Zhovtis-Ryerson, MD, of NYU Langone Medical
       Center in New York City, who presented the findings at a
       platform session during the European Committee for Treatment and
       Research in Multiple Sclerosis annual meeting here.
       >
       > Moreover, there have been four PML cases among those on
       standard dosing versus none in the extended-dosing group, she
       reported. But the difference is not statistically significant,
       because the numbers of patients and duration of treatment have
       not yet met the threshold needed to demonstrate a significant
       difference, Zhovtis-Ryerson said.
       >
       > But at this point, it may not be premature to state that the
       extended-dosing strategy does not sacrifice efficacy. Specific
       findings were as follows:
       >
       > ~Percentage of patients with relapse or clinical worsening:
       23% with standard dosing, 18% with extended dosing (P=0.03)
       >
       > ~Annualized relapse rate: 0.14 standard, 0.09 extended
       (P=0.02)
       >
       > ~Percentage with new T2 lesions: 17% standard, 14% extended
       (P=0.02)
       >
       > ~Percentage with gadolinium-enhancing lesions: 7% standard, 9%
       extended (P=0.08)
       >
       > ~Percentage with no evidence of disease activity (clinical and
       radiographic): 62% standard, 61% extended (P=0.83)
       >
       > Earlier this year, when Zhovtis-Ryerson and colleagues
       reported initial results from the study, there were two cases of
       PML in the standard-dose group versus none receiving extended
       dosing, and relapse rates and MRI activity levels were similar.
       At that time, and again here, she said that 1,248 patient-years
       of exposure would be needed to pronounce a significant advantage
       for one dosing strategy over the other at the P<0.05 level.
       >
       > Currently, she said the standard-dose group had 1,052
       patient-years among JC virus-positive participants and 1,090
       patient-years in the extended-dosing group.
       >
       > However, accrual of patient-years of exposure is proceeding
       slowly, she told MedPage Today here, and the research team
       expects it will be another 18 months before both groups reach
       the 1,248 mark.
       >
       > Label instructions for natalizumab dosing call for the drug to
       be given every 4 weeks. But researchers have wanted to determine
       whether the same degree of clinical efficacy, in reducing risk
       of relapses and MRI lesion activity, can be maintained with
       longer intervals -- the point being to reduce the overall drug
       exposure and with it, presumably, the risk of developing PML.
       >
       > Rates of PML have been found to increase with years of
       natalizumab exposure, but it remains unknown whether reducing
       the exposure in terms of milligrams per year will also cut the
       PML risk.
       >
       > PML has been the biggest barrier to use of natalizumab, which
       otherwise is a highly effective and relatively safe agent for
       relapsing-remitting MS. Among patients positive for JC virus
       (the actual causative agent) who remain on natalizumab for more
       than 2 years at standard dosing, about 0.5%-1% will develop PML,
       depending on prior exposure to immunosuppressants. Roughly 20%
       of PML cases are fatal and many survivors have permanent
       disabilities.
       >
       > The current study's design involves regular chart reviews,
       conducted on a prospective basis but without randomized
       treatment assignments, of patients receiving natalizumab on a
       variety of dosing schedules chosen by their treating physicians.
       Zhovtis-Ryerson and colleagues have stratified patients into the
       following groups:
       >
       > Standard dosing (every 4 weeks)
       > Extended dosing (every 31 to 61 days)
       >
       > That no patients in the latter group developed PML, versus
       four with standard dosing, is all the more impressive because
       the recognized risk factors for PML were more common in those
       receiving the extended dosing -- as might be expected since
       clinicians may be inclined to recommend less frequent
       natalizumab dosing for patients deemed to have high PML risk.
       >
       > Of the 905 patients in this group, 59% were positive for JC
       virus and 18% had received prior immunosuppressants, compared
       with 48% and 12% of the standard-dosed patients, respectively
       (both P&#8804;0.01). Moreover, Zhovtis-Ryerson said, the
       percentage receiving natalizumab for longer than 2 years was
       higher in the extended-dosing group, although she didn't present
       specific numbers.
       >
       > Zhovtis-Ryerson said that recent data from other studies
       support the concept that a longer dosing interval could preserve
       natalizumab efficacy. These data point to the drug's saturation
       of its target, the alpha-4/beta-1 integrin molecule, as a key
       factor.
       >
       > Specifically, it appears that target saturation need not be
       100% to stop relapses and lesion activity. Partial saturation
       may be all that's necessary, and by allowing a degree of the
       target's normal function, it may allow immune surveillance and
       function in the nervous system to remain strong enough to
       maintain JC virus suppression. PML is believed to result from a
       diminution of immune surveillance and function that allows
       latent JC virus infection to become active within the brain.
       >
       > Zhovtis-Ryerson emphasized that data from the current study
       may never be fully adequate to justify extended dosing as a
       routine strategy. She urged that a prospective, randomized
       non-inferiority trial be conducted.
       > The current study had no commercial funding.
       >
       > ____________________
       >
       > Zhovtis-Ryerson and several co-authors reported research
       support and/or consulting relationships with Biogen Idec,
       manufacturer of natalizumab. Authors reported relationships as
       well with other commercial entities including Teva, EMD Serono,
       Novartis, Genzyme, Genentech, Acorda, Shire, and Questcor
       --- End Quote ---
       But what about this?
       --- Quote ---
       > ~Percentage with gadolinium-enhancing lesions: 7% standard, 9%
       extended (P=0.08)
       --- End Quote ---
       It looks to my untrained eye as if those on the extended dose
       were at greater risk of having gadolinium-enhancing lesions.
       Also,
       --- Quote ---
       > Standard dosing (every 4 weeks)
       > Extended dosing (every 31 to 61 days)
       >
       --- End Quote ---
       At least some of those on the experimental extended dosing were
       receiving Tysabri more often than once every 8 weeks. In fact,
       those who were receiving it every 31 days, for instance, were
       getting Tysabri only slightly less often than those on the
       standard dose. Or don't I understand this right?
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