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       #Post#: 2916--------------------------------------------------
       Intesting program
       By: Gemmell2009 Date: January 31, 2011, 4:11 pm
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       Just caught an iterating program on sky3 called One if a kind:
       transforming keegan. It's about a child that's skull was fused
       together.
       What makes it interesting for me is that thus is what my boy
       also had. In this case Keegan had a severe case and made Logan
       (my boy) case very light as he only had 2 pionts on his skull
       that fused. We where also very lucky that he has only had 1
       operation that has Ieper re-form his skull.
       With ou grewsome pics - my boy at the age of 10 months had a
       skull the shape "Alien". It was elongated from from front to
       back and slim in on the sides. The operation included taking
       sections of bone from his skull almost across his entire skull,
       this was to encourage the skull growth in a normal way.
       As said this was sucsessfull and now 2 years on (3 in June) He
       has visits to hospital occasionally and has recently had a
       speech and social inclusion assessment (we where informed that
       socially he was fine and his language was very very good)
       All in all its something that is becoming more and more common.
       The syndrome is called cranio sytosis (can't spell it - like
       most words) and my wife who does use facebook has been following
       the cranio facebook site for a while.
       Gemmell
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